This weblog is dedicated to my daughter Sophia. She inspires all that meet her with her strength and perseverance. Though she was born with a severe congenital heart defect, the bounds of her love are infinite.
I live in Kansas City with my loving and happy family . My wife's name is Patty and my daughter is Sophia. Sophia was born with a congenital heart defect called Tetralogy of Fallot. Her defect was complicated by pulmonary atresia, a defect where the pulmonary arteries are not connected to the heart. She also has Digeorge Syndrome, a genetic disorder which was the cause of her defect.